Soft Bones, Inc. Hypophosphatasia Foundation was organized in 2009 to provide information and to establish a forum to educate, empower and connect patients living with hypophosphatasia (HPP). Deborah Sittig founded Soft Bones after her son was diagnosed at just 18 months old. The Sittig family was concerned about the lack of information or anyone to turn to for support and started Soft Bones to connect with patients and medical experts from around the world. The mission of the Soft Bones Foundation is to provide valuable information, education and support for people living with Hypophosphatasia (HPP), their families and caregivers. The Foundation will also promote research of this rare bone disease through awareness and fund-raising efforts.
