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Mechanistic and Therapeutic Insights into Skeletal Biology Learned from the Study of Rare Bone Diseases

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Thursday, September 11th, 2014 (One day prior to the ASBMR 2014 Annual Meeting)

George R. Brown Convention Center, 1001 Avenida De Las Americas, Houston, TX 

Workshop Summary:  To date, nearly 500 unique rare bone diseases have been described, which in the aggregate affect 1 in 5,000 live births, and comprise 5% of all birth defects. Typically the disability caused by these diseases affects individuals throughout their lives. Currently, the vast majority of these disorders have no cure, yet studying rare bone diseases has helped elucidate biological pathways and reveal valuable targets for drug discovery that are benefitting patients with common bone diseases too.

This workshop, coordinated by the National Bone Health Alliance (NBHA) in partnership with the Rare Bone Disease Patient Network and with the support of the American Society for Bone and Mineral Research (ASBMR) and the United States Bone and Joint Initiative (USBJI) aims to:

1)     Convene a multi-disciplinary group of experts including researchers, clinicians, and patients with rare bone diseases to advance our understanding of skeletal biology and encourage the development of novel therapies to improve outcomes for individuals with both common and rare bone diseases;

2)     Identify gaps in our knowledge regarding the biologic mechanisms underlying rare bone disorders and share effective research strategies in translational and therapeutic areas;

3)     Encourage broad participation both by holding the event the day before the ASBMR 2014 Annual Meeting and providing funding for a significant number of young investigators to attend; and

4)     Disseminate the results broadly by publishing the proceedings of the program in a peer-reviewed journal.

The one-day workshop will include lectures by invited speakers, and multiple opportunities to initiate collaborations and encourage future research partnerships.

Click here to view the preliminary agenda.

Click here to view the members of the NBHA Rare Bone Disease Working Group and Rare Bone Disease Patient Network.

Register for this workshop via the ASBMR Annual Meeting website: http://www.asbmr.org/annual-meeting

This workshop is supported in part by unrestricted educational grants from the following companies:

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News

2014-09-16

Eye on Bone Health Volume 4 Issue 2 September 2014

Read the fall issue of NBHA's Eye on Bone Health newsletter for an update on the organization's Fracture Liaison Service demonstration project, the latest on Fracture Prevention CENTRAL and more.

Member spotlight

American Bone Health

 

American Bone Health provides education, resources, and tools to help you understand bone disease and bone health.

Whether you are newly diagnosed with osteoporosis, looking for testing, in a treatment program or interested in ways to prevent bone loss, American Bone Health has a wealth of information to help you.

We use insights from our research organization, the Foundation for Osteoporosis Research and Education (FORE), to stay abreast of the latest technologies and treatments. FORE focuses on research and professional education. We at American Bone Health focus on supporting you and your community. In addition to education and tools, we also provide opportunities for you to get involved to spread the word about bone health and osteoporosis prevention.

We realize you’re on the front lines and we promise to be there with you every step of the way. Educating and supporting communities and families like yours is our priority.

Join us as we spread the word about healthy bones one community at a time.