National Bone Health Alliance
Strong Bones America

Staff

NBHA staff work closely with its member organizations and other experts to implement initiatives, communications, activities and events in support of the Alliance’s vision. Learn more about the NBHA staff. Andrea Portillo Medeiros, MPH Marketing, Membership and Fundraising Manager at the National Bone Health Alliance (andrea.portillo@nbha.org) Mrs. Medeiros joined the National Bone Health Alliance (NBHA) and the National Osteoporosis Foundation (NOF) in 2014. She works to maintain memberships and marketing efforts for NBHA and NOF. She also works on projects such as the FLS consults and ongoing studies. Mrs. Medeiros holds a MPH from Nova Southeastern University and a B.S. in Health Sciences from the University of Central Florida.

Member spotlight

XLH Network, Inc.

The XLH Network is a patient advocacy organization. X-Linked Hypophosphatemia (XLH) is a relatively rare genetic phosphate wasting disorder, affecting an estimated 1 in 20,000 people. Children who inherit the disease present with rickets, severe bowing or knock-kneed legs and short stature while debilitating bone and cartilage abnormalities persist throughout adulthood, despite treatment. At present, there is no cure for XLH.